![]() Trial registration number: ACTRN12615000314527.Ĭhronic kidney disease (CKD) is a growing public health problem that affects 10-15% of the adult population. While directly relevant to inform policy and practice in this context, it is possible that patients experiences with, and preferences for, home dialysis may vary across countries. ■ It will be conducted in one country, New Zealand. ■Ğxplores financial and cultural influences on patient and caregivers dialysis modality decision-making. ■Ğxplores predialysis patients perspectives which are previously not well researched. ■Ěddresses two of the top 10 research uncertainties of patients. ■ The inclusion of qualitative interviews to inform the attributes for the discrete choice experiments. Reports will be disseminated to funders and participating renal units and to the New Zealand Ministry of Health. Dissemination to patients will take the form of presentations, newsletters and reports to support and community groups. Findings will be presented in national/ international conferences and peer-reviewed journals. Ethics and dissemination: The Hawke's Bay, Counties Manukau, and Capital Coast District Health Board Research Ethics Committees approved the study. We will undertake DCEs with approximately 150 patients and 150 caregivers to quantify preferences for home and facility dialysis. Additional to providing information on the perspectives and experiences of patients and caregivers, these analyses will also inform the design of discrete choice experiments (DCEs). Thematic analysis of interview transcripts will be conducted. Face-to-face, semistructured interviews will be conducted with 30-40 patients and 10-15 caregivers. Methods and analysis: This study will use a mixed-methods approach to describe patient and caregiver preferences and views about the factors that influence their choice of home or facility-based dialysis. The Home First study will explore patients' and caregivers' beliefs, attitudes and preferences regarding dialysis education and decision-making with regards to dialysis options to identify key attributes which influence their decision-making, and to quantify the relative value of these attributes. Predialysis education and offering patients choice increase home dialysis uptake, yet the factors that patients and families are willing to trade off in making decisions about dialysis location are not well understood. ![]() International guidelines recommend suitable patients are offered a choice of dialysis modality, including home-based dialysis. Compared with facility-based dialysis, dialysis performed by the patient at home is associated with higher quality of life, freedom, survival and reduced healthcare costs. The number of patients requiring dialysis continues to increase worldwide imposing a substantial social and economic burden on patients, their families and healthcare systems. Received 8 December 2014 Revised 12 March 2015 Accepted 18 March 2015įor numbered affiliations see end of article. To view these files please visit the journal online ( bmjopen-2014-007405). ► Prepublication history for this paper is available online. ![]() Patient and caregiver preferences for home dialysis -the home first study: a protocol for qualitative interviews and discrete choice experiments. To cite: Walker RC, Morton RL, Tong A, etal. Rachael C Walker,1'2 Rachael L Morton,2'3 Allison Tong,2'4 Mark R Marshall,5'6'7 Suetonia Palmer,8 Kirsten Howard2,9 BMJ Open Patient and caregiver preferences for home dialysis -the home first study: a protocol for qualitative interviews and discrete choice experiments ![]()
0 Comments
Leave a Reply. |
AuthorWrite something about yourself. No need to be fancy, just an overview. ArchivesCategories |